March 29, 2017
I find it ironic that before I became disabled, one of my last jobs was teaching social workers and doing outreach to the public about Medicare Savings Programs (MSPs) and now I rely on them. If the government hadn’t funded a grant for me to do this outreach, I might never have known this program exists. Problem is, most doctors, hospitals, politicians, and even the Medicaid offices that administer them don’t understand them at all which limits my access to care at times. Not to mention, most don’t know that their low-income Medicare patients could qualify for them.
The Medicare Savings Programs are a great resource for those who are poor and need medical assistance. The problem is, they shouldn’t be administered by the states through the state eligibility offices with Medicaid. This current set up confuses providers, creates huge burdens on patients, and adds stress to an already broken system with subpar tools and resources. But because it is administered along with Medicaid, as if it’s Medicaid, I’m subjected to this system, one that already already makes me feel like a burden, one that takes away my dignity as I try to simply get by. And unfortunately, it’s never going to get better.
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May 6, 2016
Recently, the diabetes online community has been in a bit of an uproar over United Healthcare’s decision to name the Medtronic insulin pump as the preferred pump for all on its plan. #MyPumpMyChoice and #DiabetesAccessMatters are added to every tweet on the issue as people debate choice in health care, health care costs, and access to healthcare in general (though mostly around tech – i.e. insulin pumps).
For some time now I have been rather frustrated with the larger issues of access, the ones that don’t get talked about as much and don’t have popular hashtags, the ones that aren’t sexy but are often more critical. And those include basics like access to dental care and eye care and mental health care – (and I know this will piss many off) but what I think are the real access issues.
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September 6, 2014
My friend Carolyn Thomas posted an open letter I wrote on her website Heart Sisters. As a result, Medicine X asked me to participate in their conference this year and presented my reading a shorter version – video below.
“Dear Medicine X Conference organizers, Read the rest of this entry »
March 17, 2014
Last week I talked about my experience in the hospital that was Not Meant to Be. Among the many issues was an overarching theme of access to healthcare. As I said before, only by the grace of the passage of EMTALA (the Emergency Medical Treatment and Labor Act) passed in 1986, was I able to get the care I needed.
EMTALA requires Medicare-participating hospitals that offer emergency services to provide medical screening examination and stabilizing treatment for patients with emergency medical conditions regardless of an individual’s ability to pay. EMTALA is incredibly important for the uninsured, but it isn’t enough. Read the rest of this entry »
March 13, 2014
I don’t believe in the phrase “it was meant to be” or “this is all happening for a reason” because I can’t believe that people are meant to be hurt. I can’t believe that children are meant to starve to death or women abused. I do think that when something happens, even though it’s not meant to be, we have an opportunity to create change.
If you follow me on twitter you will see that I’ve been tweeting a lot about my experience with St. David’s HealthCare. I have never seen or experienced so many medical errors and medical record errors in one person’s case. What astonishes me aren’t the individual errors alone but the number of errors – a true systems failure where there were inexcusable errors at every single point of care. Honestly, it is amazing that I am physically okay considering the errors made – the potential that I could have died. But the mental recovery is ongoing as I process my personal experience and consider how to use the opportunity to ask for change in the medical system. Read the rest of this entry »
February 3, 2014
There are a lot of things you cannot afford on $875 per month. But according to the State of Texas $875 means you are too rich to be on Medicaid – even if you are disabled and thus by definition need medical care.
Last year, I made one of the hardest decisions I’ve ever had to make – to apply for Social Security Disability. After more than a year of struggling, I came to the hard realization that I had to accept that my disabilities prohibited me from working – or as the Social Security Administration says, engage in “substantial gainful activity.”
‘How could this be so’ everyone, including myself, asks? I am a lawyer. I am told I am intelligent and head strong, a leader with ambition and drive. I have overcome so many obstacles and given all of myself to make an impact in society. Yet, 4 autoimmune diseases, 13 chronic health conditions, and many setbacks the sobering realization that I could not give of myself anymore forced me to accepting my disabilities and need for assistance. Read the rest of this entry »
October 18, 2013
Dear AstraZeneca – AZ&Me Prescription Savings Program,
Recently I applied to your program as I do not have insurance and cannot afford my medications. In return you sent me an email that said:
Thank you for your interest in the AZ&Me Prescription Savings Program. Based on the information you provided, we have determined that you may be eligible to receive your AstraZeneca medicine(s) from the following alternate funding source or co-pay assistance program…
I called your service line and explained – I’m in Texas. No single adult in Texas without children, not pregnant, and not found disabled are eligible for Medicaid. You said I still had to apply and get a denial letter before you would help me. Read the rest of this entry »