This blog has never been wonderfully defined. It is “Health as a Human Right” because I knew when I started writing that human rights, especially the right to health is a passion of mine. I wasn’t sure exactly where I wanted it to go and started by talking about current events or issues in healthcare and policy. It has over the years come to include more of my personal experiences fighting physical and mental health illnesses. And now I’m expanding the scope once again, to include all rights.
T1International advocates for #insulin4all – an endeavor to ensure all of those with diabetes have access to the medicine, healthcare, and education they need to thrive. I had the distinct pleasure of helping T1International develop a document explaining the human rights aspects for those with diabetes. I was quite honored to be asked to offer my human rights law background to outline the various organizations and documents that make up our right to health and to insulin. Read the rest of this entry »
The rate of change of displacement with time. V= S/T where S is for speed and T is for time.
My Velocity led me to Bosnia and Herzegovina in 2006, to the Children’s Home of Mostar. My Velocity to led me to advocate for health as a human right.
Recently, I decided to revisit my journal entries from the summer of 2006, one of the healthiest and happiest times of my life. More importantly, the time that helped determined my velocity in life. I needed to remember this pivotal moments in a time when I find myself filled with uncertainty.
I was recently asked to give a series of expert interviews for Askimo on various subjects in health law and policy. Askimo provides three main services: it is a free library of 4-10 minute interviews with experts from around the globe, speaking on issues about which they are most knowledgeable. It could be a tax law or a medical disease — knowledge that is practical and can help in daily life.
“I like knowledge,” said David Butnaro, owner of Askimo, based in Tel Aviv, Israel, and soon to have an office in Maryland. He describes Askimo as “a cross between Wikipedia and TED.” Currently, the platform has close to 3,000 videos in its library in languages ranging from English to Hebrew to French; 60 percent are in English.
I really enjoyed this opportunity to translate complicated health law and policy subjects and introduce some new ideas like ePatients (I hope I did all ePatients justice) to the world. Who knows how this knowledge will impact someone’s life.
Below are links to these interviews.
- International Trade Laws and Pharmaceuticals
- Mental Health
- Genetic Patenting
- Pay for Delay” – Pharmaceutical Patent Dispute Settlements
- Accountable Care Organizations
- Meaningful Use
- Health As A Human Right
- HIPAA and New Technologies
- Being an ePatient
Note – I look forward to the Supreme Court’s decision in FTC v. Actavis after oral arguments this Monday, March 25, 2013, exploring the legality of Pay-For-Delay Settlements.
I also look forward to the Supreme Court’s Decision in Myriad Genetics which will discusses the patentability of the BRCA-1 and-2 genes and the processes to test for them as discussed in “Genetic Patenting” above.
While several other misunderstandings about health as a human right and how we achieve that through health care, I want to address the position many take that if we recognize health as a right, we are essentially allowing means that people must have affordable access to any and all treatment.
I find it intriguing what we forget. Only two months ago the news was reporting on the famine in the Horn of Africa. Yet today the news is silent while the crisis continues, and expands. Yemen and North Korea are experiencing food crises as well. How can we forget famine?
I understand that forgetting can be protective. Constantly hearing about disasters can create compassion fatigue. Yet, forgetting doesn’t mean the problems are resolved. While it is difficult to hear of disasters, we must try to remember how much more difficult it is for those suffering and push beyond our boundaries of comfort to help them. Forgetting is easy, remembering, recognizing, and taking action takes courage and compassion.
Malaria “has been killing children and sapping the strength of whole populations for tens of thousands of years. Now we can chart a course to end it.
Eradicating malaria is not a vague, unrealistic aspiration but a tough, ambitious goal that can be reached within the next few decades. – Bill Gates
Bill Gates called for the eradication of malaria in 2007. This week, the New England Journal of Medicine published the results of the phase 3 trial of a malaria vaccine by GlaxoSmithKleine (GSK) given to African children between 5- and 17-months old finding it to “provid[e] protection against both clinical and severe malaria.” In fact, the halved the risk of those vaccinated from getting malaria bringing us one step closer to eradicating the disease – perhaps for many countries in the next decade.