Healthcare Does Not Have a Problem With Silos

August 3, 2017

Healthcare does not have a problem with silos.

In fact, there are no silos in healthcare; there are only boundaries.

If we truly want to change healthcare, we need to break boundaries.

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Customer Service

December 21, 2014

My second real job was working as a cashier at Nordstrom in the Women’s Shoe department (my first job as a sales associate at a small children’s bookstore – Sunnybooks for Kids).  At orientation, Nordstrom taught us a few things that have stuck with me throughout my life since – people are generally telling the truth, customer service is paramount, and treat everyone with dignity.  Lessons that should be applied to healthcare (and life).

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Why EMTALA Still Matters But Isn’t Enough

March 17, 2014

Last week I talked about my experience in the hospital that was Not Meant to Be.  Among the many issues was an overarching theme of access to healthcare.  As I said before, only by the grace of the passage of EMTALA (the Emergency Medical Treatment and Labor Act) passed in 1986, was I able to get the care I needed.

EMTALA requires Medicare-participating hospitals that offer emergency services to provide medical screening examination and stabilizing treatment for patients with emergency medical conditions regardless of an individual’s ability to pay.  EMTALA is incredibly important for the uninsured, but it isn’t enough. Read the rest of this entry »


Not Meant to Be

March 13, 2014

I don’t believe in the phrase “it was meant to be” or “this is all happening for a reason” because I can’t believe that people are meant to be hurt.  I can’t believe that children are meant to starve to death or women abused.  I do think that when something happens, even though it’s not meant to be, we have an opportunity to create change.

If you follow me on twitter you will see that I’ve been tweeting a lot about my experience with St. David’s HealthCare.  I have never seen or experienced so many medical errors and medical record errors in one person’s case.  What astonishes me aren’t the individual errors alone but the number of errors – a true systems failure where there were inexcusable errors at every single point of care.  Honestly, it is amazing that I am physically okay considering the errors made – the potential that I could have died.  But the mental recovery is ongoing as I process my personal experience and consider how to use the opportunity to ask for change in the medical system. Read the rest of this entry »


Patient-Centered Design: Breaking Boundaries with projekt202

April 14, 2013

Originally posted by me on the Nebular Health Tech blog.

On April 9, 2013, Nebular Health Tech kicked off with it’s first meeting featuring projekt202.  Erin Gilmer started the meeting with an ignite speech introducing the group, why she feels a group like this is important for our community, her personal health challenges, and how together we can break boundaries and create something Nebular.  She handed off the meeting to Aliza Gold and Kijana Knight, user experience designers to talk about their experience “Rethinking the Fertility Patient Journey.”

What is user experience design (also referred to as UX)?   UX refers to all aspects of a user’s experience with a given system, including the interface, graphics, industrial design, and physical interaction.  For instance, the way your phone looks – the way the buttons are pushed and the way things move – UX’ers do that! They study behaviour and how to make technology accessible.

User-centered design is one of the most important aspects for health tech.  In fact, the FDA requires software for medical devices (which may soon include mobile medical apps) to incorporate sound principles of design.  This is where companies like projekt202 come in.

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Forming Nebular Health Tech in Austin

March 22, 2013

I want to repost this post from the new Nebular Health Tech group founded today in Austin, TX.  As you can tell from this blog, Health IT is incredibly important to me as a human rights advocate, an ePatient, a lawyer, and an activist.

Here is the story about forming Nebular Health Tech in Austin:

While other posts may be more innovation news oriented (guest posts welcome!), I wanted to start with a post about the formation of Nebular Health Tech – what this group is about, who we are, what we’ll do, how we can make a difference in health and healthcare.

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Happy Nurses Week!

May 6, 2011

Today kicks off National Nurses Week!  Celebrating the birthday of Florence Nightingale.

Time to recognize those that work hard to take care of us.  Often they do the grunt work and provide com passion and sympathy when we’re not feeling well.  They are integral to our care and are never thanked enough.  So please thank your nurse at your doctor’s office, school, emergency room, and clinics.

We should also take time this week to focus on America’s nursing shortage and issues with the hours nurses work.

The Center to Champion Nursing in America is holding a photo contest asking for your photos of nurses leading and delivering patient-centered, collaborative health care, especially in rural areas of the country. One winning photograph will be featured in an AARP print and/or web publication.  What a great way to celebrate your nurse.

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Dedicated to some amazing nurses I know.