Yesterday I testified on House Bill 1009, Diabetes Drug Pricing Transparency Act 2018 in the Colorado State Legislature’s House Health, Insurance, and Environment Committee. Today is the other side of advocacy.
I have had many a terse conversation with doctors about the sacrifices they make to medicine – all they give to take care of patients. I recognize and respect their sacrifices, sacrifices of time, energy, mental health. The suicide rates for doctors is a crisis in itself as highlighted in this recent post in the Washington Post – “What I’ve learned from my tally of 757 doctor suicides.” The effects of the sacrifices that doctors make to the profession are real, but they aren’t the only ones who sacrifice.
There are ripple effects.
There are consequences for those immersed in medicine, surrounded by it. For those of us who are not doctors whose lives are intricately linked to this profession that can both hurt and heal in the most profound ways.
When I have these discussions with doctors, they have no idea what I’ve sacrificed. I haven’t been able to talk about it before in more than obscure references. But now I can and I think what I have might be worth saying both to understand my advocacy better and perhaps, even more importantly, help doctors gain another view of medicine – one that holds compassion for their lives and also asks for acknowledgment of ours.
Healthcare does not have a problem with silos.
In fact, there are no silos in healthcare; there are only boundaries.
If we truly want to change healthcare, we need to break boundaries.
Diabetes Blog Week continues with the topic for Tuesday being The Cost of a Chronic Illness:
Insulin and other diabetes medications and supplies can be costly. Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage. So today, let’s discuss how cost impacts our diabetes care. Do you have advice to share? For those outside the US, is cost a concern? Are there other factors such as accessibility or education that cause barriers to your diabetes care?
T1International advocates for #insulin4all – an endeavor to ensure all of those with diabetes have access to the medicine, healthcare, and education they need to thrive. I had the distinct pleasure of helping T1International develop a document explaining the human rights aspects for those with diabetes. I was quite honored to be asked to offer my human rights law background to outline the various organizations and documents that make up our right to health and to insulin. Read the rest of this entry »
Caution: swear words below
I am in no mood today. Read the rest of this entry »
Though 1.6% of the U.S. population have borderline personality disorder (some studies suggest actually up to 5.9% have the diagnosis), as of right now, there are NO FDA approved medications for the treatment of BPD. I ask this year that Big Pharma make a resolution to address the treatment of and stigma surrounding BPD.