T1International and Rights of People with Type 1 Diabetes

November 30, 2016

T1International advocates for #insulin4all – an endeavor to ensure all of those with diabetes have access to the medicine, healthcare, and education they need to thrive.  I had the distinct pleasure of helping T1International develop a document explaining the human rights aspects for those with diabetes.  I was quite honored to be asked to offer my human rights law background to outline the various organizations and documents that make up our right to health and to insulin. Read the rest of this entry »


A Brief Tantrum

March 21, 2016

Caution: swear words below

image

I am in no mood today. Read the rest of this entry »


Big Pharma Needs to Make a Resolution to Address Borderline Personality Disorder

January 2, 2016

Though 1.6% of the U.S. population have borderline personality disorder (some studies suggest actually up to 5.9% have the diagnosis), as of right now, there are NO FDA approved medications for the treatment of BPD.  I ask this year that Big Pharma make a resolution to address the treatment of and stigma surrounding BPD.

Read the rest of this entry »


I Am Them

September 6, 2014

My friend Carolyn Thomas posted an open letter I wrote on her website Heart Sisters.  As a result, Medicine X asked me to participate in their conference this year and presented my reading a shorter version – video below.

“Dear Medicine X Conference organizers, Read the rest of this entry »


Not Meant to Be

March 13, 2014

I don’t believe in the phrase “it was meant to be” or “this is all happening for a reason” because I can’t believe that people are meant to be hurt.  I can’t believe that children are meant to starve to death or women abused.  I do think that when something happens, even though it’s not meant to be, we have an opportunity to create change.

If you follow me on twitter you will see that I’ve been tweeting a lot about my experience with St. David’s HealthCare.  I have never seen or experienced so many medical errors and medical record errors in one person’s case.  What astonishes me aren’t the individual errors alone but the number of errors – a true systems failure where there were inexcusable errors at every single point of care.  Honestly, it is amazing that I am physically okay considering the errors made – the potential that I could have died.  But the mental recovery is ongoing as I process my personal experience and consider how to use the opportunity to ask for change in the medical system. Read the rest of this entry »


Dear AstraZeneca – AZ&Me Prescription Savings Program

October 18, 2013

Dear AstraZeneca – AZ&Me Prescription Savings Program,

Recently I applied to your program as I do not have insurance and cannot afford my medications.  In return you sent me an email that said:

Thank you for your interest in the AZ&Me Prescription Savings Program.  Based on the information you provided, we have determined that you may be eligible to receive your AstraZeneca medicine(s) from the following alternate funding source or co-pay assistance program…

Medicaid”

I called your service line and explained – I’m in Texas.  No single adult in Texas without children, not pregnant, and not found disabled are eligible for Medicaid.  You said I still had to apply and get a denial letter before you would help me. Read the rest of this entry »


Sharing Clinical Trial Data

March 30, 2013

While Big Data is a buzzword thrown about as a promise to change health and healthcare, the reality is we still have many barriers in realizing what our health data can really do.  Big Data is the concept of really large data sets.  As part of Obama’s Open Government Initiative, the government has posted an enormous amount of data sets generated by the federal government at Data.gov.  And they’ve released data specific to health at HealthData.gov clinical care provider quality information, nationwide health service provider directories, databases of the latest medical and scientific knowledge, consumer product data, community health performance information, government spending data.

But this data does not include data held by private companies or research institutions who conduct clinical trials.  This leaves data sitting in repositories that could improve public health, enhance patient safety, and spur drug development if shared more widely both within and across sectors.  But the tides are changing.

Read the rest of this entry »