May 16, 2017
Diabetes Blog Week continues with the topic for Tuesday being The Cost of a Chronic Illness:
Insulin and other diabetes medications and supplies can be costly. Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage. So today, let’s discuss how cost impacts our diabetes care. Do you have advice to share? For those outside the US, is cost a concern? Are there other factors such as accessibility or education that cause barriers to your diabetes care?
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November 30, 2016
T1International advocates for #insulin4all – an endeavor to ensure all of those with diabetes have access to the medicine, healthcare, and education they need to thrive. I had the distinct pleasure of helping T1International develop a document explaining the human rights aspects for those with diabetes. I was quite honored to be asked to offer my human rights law background to outline the various organizations and documents that make up our right to health and to insulin. Read the rest of this entry »
March 21, 2016
Caution: swear words below
I am in no mood today. Read the rest of this entry »
January 2, 2016
Though 1.6% of the U.S. population have borderline personality disorder (some studies suggest actually up to 5.9% have the diagnosis), as of right now, there are NO FDA approved medications for the treatment of BPD. I ask this year that Big Pharma make a resolution to address the treatment of and stigma surrounding BPD.
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September 6, 2014
My friend Carolyn Thomas posted an open letter I wrote on her website Heart Sisters. As a result, Medicine X asked me to participate in their conference this year and presented my reading a shorter version – video below.
“Dear Medicine X Conference organizers, Read the rest of this entry »
March 13, 2014
I don’t believe in the phrase “it was meant to be” or “this is all happening for a reason” because I can’t believe that people are meant to be hurt. I can’t believe that children are meant to starve to death or women abused. I do think that when something happens, even though it’s not meant to be, we have an opportunity to create change.
If you follow me on twitter you will see that I’ve been tweeting a lot about my experience with St. David’s HealthCare. I have never seen or experienced so many medical errors and medical record errors in one person’s case. What astonishes me aren’t the individual errors alone but the number of errors – a true systems failure where there were inexcusable errors at every single point of care. Honestly, it is amazing that I am physically okay considering the errors made – the potential that I could have died. But the mental recovery is ongoing as I process my personal experience and consider how to use the opportunity to ask for change in the medical system. Read the rest of this entry »
October 18, 2013
Dear AstraZeneca – AZ&Me Prescription Savings Program,
Recently I applied to your program as I do not have insurance and cannot afford my medications. In return you sent me an email that said:
Thank you for your interest in the AZ&Me Prescription Savings Program. Based on the information you provided, we have determined that you may be eligible to receive your AstraZeneca medicine(s) from the following alternate funding source or co-pay assistance program…
I called your service line and explained – I’m in Texas. No single adult in Texas without children, not pregnant, and not found disabled are eligible for Medicaid. You said I still had to apply and get a denial letter before you would help me. Read the rest of this entry »