I can’t count the number of times the topic of who is and should be included in policy discussions and conferences comes up. Just this week I encountered two examples where patients though ostensibly “included” were not included really at all. Considering how long this has been an issue and how often it is discussed in patient communities, I am still disappointed that the discussion continues and inclusivity has not really expanded to mean all patients included.
T1International advocates for #insulin4all – an endeavor to ensure all of those with diabetes have access to the medicine, healthcare, and education they need to thrive. I had the distinct pleasure of helping T1International develop a document explaining the human rights aspects for those with diabetes. I was quite honored to be asked to offer my human rights law background to outline the various organizations and documents that make up our right to health and to insulin. Read the rest of this entry »
To be critical is often seen as a negative attribute in our society.
Unless, you are being a critical thinker or giving a critical analysis in academia. Then the being critical may be praised.
When we use critical to describe something other than a person however, when something is critical we know that it is of utmost importance – whether it be a critical idea that one hopes to get across or a sign of impending disaster. Critical then marks a kind of apex – a point from which much could change going forward.
Today I ran into my old figure skating coach. She was my first coach some 24 years ago and while it was a delight to see her, it was also incredibly awkward. The thing is, whether I’m running into an old acquaintance or meeting new people, I’m never quite sure what to say.
I’m giving up on patient portals.
I asked my doctors to deactivate my accounts and I’m sticking to email.
After writing a blog post on the need to inform others when I am having a panic attack, I did go back and make a few of my own cards. When Nikki Seefeldt over at I Live & Breath reposted the blog on her site, I was reminded that I wanted to share my solution. I’m posting the cards here so you can get an idea of what worked for me end hope that others will feel free to use them or adapt them to fit their needs.
I will note that some individuals suggested that I include more information like a website address. However, given that these are to be used in emergencies, I felt that the simpler the better and that the person helping will not have time to go to and search a website for helpful information while I’m having a panic attack. Others may find that they want more or less information for their cards. But I encourage anyone making their own cards to focus on only including the minimum necessary information to get the help you need in that moment.
You may save these images from my site or feel free to contact me via the comments below or on Twitter @GilmerHealthLaw and I can send you the files I worked on. They are designed to fit the size of a business card.
I only ask that you do not use these to make a profit for yourself or any other organization. I would like to keep these free and accessible to the community.