I have the grand misfortune of having 3 of the most stigmatized diseases – type 1 diabetes, celiac disease, and borderline personality disorder – and I would like the public to stop making it worse.
I never really know what to say to people when they ask what I’m doing for the holidays. I want to say – “I stopped celebrating holidays years ago when I realized they’d only bring pain.” Too many years I was hurt. This year too many are hurting.
I can’t count the number of times the topic of who is and should be included in policy discussions and conferences comes up. Just this week I encountered two examples where patients though ostensibly “included” were not included really at all. Considering how long this has been an issue and how often it is discussed in patient communities, I am still disappointed that the discussion continues and inclusivity has not really expanded to mean all patients included.
T1International advocates for #insulin4all – an endeavor to ensure all of those with diabetes have access to the medicine, healthcare, and education they need to thrive. I had the distinct pleasure of helping T1International develop a document explaining the human rights aspects for those with diabetes. I was quite honored to be asked to offer my human rights law background to outline the various organizations and documents that make up our right to health and to insulin. Read the rest of this entry »
To be critical is often seen as a negative attribute in our society.
Unless, you are being a critical thinker or giving a critical analysis in academia. Then the being critical may be praised.
When we use critical to describe something other than a person however, when something is critical we know that it is of utmost importance – whether it be a critical idea that one hopes to get across or a sign of impending disaster. Critical then marks a kind of apex – a point from which much could change going forward.
Today I ran into my old figure skating coach. She was my first coach some 24 years ago and while it was a delight to see her, it was also incredibly awkward. The thing is, whether I’m running into an old acquaintance or meeting new people, I’m never quite sure what to say.